As I explored the role of caregiver to my elderly mother, I shared my insights, ranted and wrote in the hope it would make me feel better (it did) and possibly help others in similar situations (ditto). In May 2018, the aggregated blog posts and life lessons derived from my journey became a real, published book called “Dementia Sucks: A Caregiver’s Journey – With Lessons Learned.” The book is available at fine bookstores, on Amazon and Barnes and Noble. I continue to share on this blog, because life is a work in progress and I will probably need an outlet for some time to come. Stop by and say “hello.”

13 Responses to About

  1. I came across your website through the yahoo group. I have to say that I thoroughly enjoyed reading your posts. They show insight, compassion and humor, not to mention that you certainly have a talent for writing. I hope that many others have the opportunity to read your posts. I will most certainly check in from time to time.Thank you for writing.

    • traceysl says:

      Hi Bobbi,

      Thanks for the kind words. It’s good to know folks are drawing something of value from my ravings. And it’s so very nice to make your online acquaintance.

      Happy Holidays,

  2. Janice says:

    Hi Tracey, Thanks for sending me the link to your blog. I cried when I read it, reminds me of my grandma when we cared for he and how lately My Mom has been with her UTI, {real confusion} How are the exelon patches doing? I’m glad you enjoyed your holidays with family. Stay strong and know I will support you.

    • traceysl says:

      Hi Janice,

      I’m glad to know you were moved by my blog. I think it’s important for us to share our experiences with others. When my Dad got sick in 2003, I was clueless about dementia and its various forms and symptoms. Going through my father’s journey with him prepared me for my Mom’s. We’re just starting to enter uncharted territory, and I’m finding new resources, which I’ll continue to share.

      As for the Exelon patches, Mom’s been on the lowest dose for a month now, and the best I can say is, there don’t appear to be any side effects and they were free samples from her doctor. I filled the Rx for the next 90 days for the higher dose; it cost $260 on her plan! (Her generic Rxs are only $12 for 90 days; she’s on a Medicare Complete plan through Oxford). Anyway, as I’m sure you know, the deal with these meds is that they’re supposed to delay the process. There’s no “going back.” So I’m hopeful she’ll maintain a level where she at least knows who we are for as long as possible. So far, so good.

      I’m glad to have made your acquaintance and I’ll be there for you too.


  3. Meagan Blais says:

    Hi Tracey,
    I came across your blog while doing research for a project I’m doing at school. I am a student at Ryerson University and I have two grandparents who suffer from Alzheimer’s Disease.

    I’m trying and determine if there is a technological solution that could improve quality of life for the caregiver as well as the individual who suffers from a dementia related disease.

    I was wondering if you’d be open to having a discussion about this initiative. If so, please contact me at the email provided.

    Thanks for your time.

  4. Viola Lilac Indue says:

    Hey, just wanted you to know that I’ve been enjoying reading your blog and I’ve nominated you for the Liebster Award.
    I’m looking forward to reading more about your role as a caregiver!

  5. Joel Anderson says:

    Your blog has been selected for a research study examining the lived experience of persons caring for someone with dementia. Analysis of the information provided in your blog will be assessed for common themes shared with others who have blogs on the same topic. No identifying information shared on the blog will be used in the analysis. Findings from the study will be summarized so that specific information cannot be traced back to your blog. If you would like your blog to be excluded from the study or for more information about the study, please contact Joel Anderson, PhD; jga3s [at] virginia [dot] edu.

    • traceysl says:

      Hello Joel. I have made my story public in the interest of helping others. I don’t post as often as I once did, but if anything I write benefits others, by all means, analyze and assess.

  6. Guillermina Altomonte says:

    Hi Tracey, congratulations on your blog. I came across it because I’m a PhD student in New York City doing qualitative research on family caregivers for the elderly (mostly parents). I have been interviewing caregivers throughout this last year in personal, in-depth conversations, and I was wondering if you would be open to meeting and talking. If you would be so kind to contact me at my email, I would love to tell you more about my project.

    All the best,

  7. Lori says:

    Your experience of placing you Mother in Hospice care is one I can empathize with. Having a timeline of any sort placed on the life of someone you love is overwhelming and heartbreaking. The Social Worker and Chaplain assigned to my Mother through Hospice were both wonderful resources and willing ears. Even though my Mom was disinclined to talk with them, I willing utilized their services.

    Take-care and God bless you!

    • traceysl says:

      Thank you Lori. It’s been a long, hard summer. I am focused on my new business, helping people plan for the kinds of events I’ve had to deal with on my journey. Doing something positive to help others gives me strength and empowers me in a situation where I often feel powerless. Thanks so much for your kind words and support. Have a wonderful day.

  8. I just found your blog, Tracey. I have been looking at many blogs about dementia, but yours is the only one I have found so far that is providing a personal story, which is what I was looking for. I started my own blog about a month ago to help me cope with my mother’s dementia and to connect with others who have someone close to them with this disease. Unfortunately, it is a growing club. I’m looking forward to starting at the beginning of your blog and reading chronologically instead of top down. Would it be acceptable if I added your blog site to my Resources page?
    Suzanne Nielson

    • traceysl says:

      Hi Suzanne! I’d say “welcome to the club,” but that would be a dubious greeting at best. I do welcome you to cite my blog as a resource. When I started my blog it was therapy for me. I’m a “journaler” by nature; writing has always helped me cope with life’s vicissitudes. It occurred to me that my experiences might have value for others, so I made it public. I have also begun turning it into a book called “Dementia Sucks: A Caregiver’s Journey.” I’m afraid we’re at the beginning of a very big wave and many will follow before a cure is found. I would like to see your blog and support you on your journey if I can. Thank you for reaching out and I hope you find value in reading my chronicles. Best wishes, Tracey

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